MS-UK Counselling is here…

We are delighted to announce that our new service, MS-UK Counselling, has now launched, and we wanted to share our short video with you…

 

Our telephone counselling service is focussed on helping you understand yourself in light of your MS and exploring its emotional impact on your life. It is available to anyone living with multiple sclerosis aged 18 and over, and is completely confidential.

Find out more about MS-UK Counselling on our website, call us on 01206 226500 or email us.

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Posted in Charity, Chronic illness, Counselling, Counselling Service, Depression, Diagnosis, disability, Disabled living, health, Helpline, MS, MS symptoms, MS-UK, Multiple Sclerosis, neurology, Telephone counselling service, Uncategorized, wellbeing | Tagged , , , , , , , , | Leave a comment

Guest blog: ‘How’d I get that?’

In this guest blog Doug Ankerman asks readers ‘How’d I get that?’ Doug, who was diagnosed with multiple sclerosis (MS) in 1997, is the author of the blog www.myoddsock.com


Let’s play the MSer’s favorite game of cuts, scrapes and bruises. It’s time for….”How’d I Get That?”

Picture Bruise #1.jpg

Hmm, a bruise on your arm.

Did you…

  1. Catch your arm on a closet door.
  2. Run into the fence post.
  3. I have MS, I don’t remember.

Picture Scrape #2.jpg

Ouch, that scrape on your knuckles seems painful.

Did you…

  1. Reach into the tool box.
  2. Touch the sharp edge under the sink.
  3. I have MS, I’m not sure.

Picture Scratch #3.jpg

What did you do to your leg?

Did you…

  1. Scrape it on the steps.
  2. Scratch it on the edge of the deck.
  3. I have MS, what scratch?

My point is, living with multiple sclerosis, we tend to acquire many unexplained nicks, marks, cuts, bumps and bangs. Often we can’t explain how they happened.

Having no feeling from the armpits down, I collect skin abrasions like a donation bucket attracts pocket change.

I find marks on my body and have no idea where they came from. I don’t even feel the blood running down my leg.

Are we superhuman?

Do we have high pain tolerance?

Nah, we just have MS.

Are you one with multiple sclerosis who finds unexplained “ouchies?”

Tell us your side – but please don’t get any blood on the keyboard.

Be safe my MS friends.

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Is your experience similar to Doug’s? Share your comments below!

Posted in blogging, Chronic illness, family and MS, Guest blog, health, MS, MS symptoms, MS-UK, Multiple Sclerosis, neurology, Pain, Uncategorized, wellbeing, Wellness | Tagged , , , , , , , , , , | Leave a comment

We’re celebrating #givingtuesday!

Hi everyone,GT_landscape_RedBlue_L0.png

Today’s the day to do good stuff for charity!

Every year businesses and charities support the #givingtuesday campaign and it’s a day dedicated to doing good stuff for charity. Last year #givingtuesday broke a Guinness World Record for the most online donations in 24 hours, as people gave away $48 million to good causes globally. The UK was the second biggest contributor to this amount.

So, how can you get involved? A simple way to make a difference on #givingtuesday is to make a donation to MS-UK. We’re here to support anyone affected by multiple sclerosis, and your donation helps us ensure nobody faces this condition alone.

Another way to do good stuff is to sign up as a volunteer. We have lots of easy, fun ways to get involved with our work throughout the year, whether it’s supporting a bucket collection or cheering on runners at a national event. Just email me to find out more about volunteering!

Of course we couldn’t let today go by without doing good stuff ourselves, so we’re off to our local Waitrose store to help shoppers pack their bags. Keep an eye on our Twitter feed for photos!

Whatever you do today to celebrate #givingtuesday, I hope you have a wonderful day and enjoy being part of this global movement!

Best wishes,

Jill

Jill Purcell, Fundraising Manager

Posted in Bag packing, Charity, Chronic illness, disability, Donations, Fundraising, GivingTuesday, MS, MS-UK, Multiple Sclerosis, supporters, Twitter, Uncategorized, Volunteering | Tagged , , , , , , , , , | Leave a comment

Last chance to join the Santa Run!

Ho-ho-hello!

SR 4Here at MS-UK we are gearing up to attend in our first Santa Run! The event takes place at Victoria Park on 03 December. Our fantastic runners will be joining 4,000 other Santa’s completing a 5k or 10k distance by walking, running or jogging in a Santa suit. The event organisers are also holding a fancy dress competition so it will be interesting to see what other festive friends will be on the course!

Once our team members have collected their medals, they will be joining us for a mini festive picnic as a thank you from us. There will be other festive entertainment to enjoy after the event including carol singers and a Christmas market. Something for all the family to enjoy!

We have just a few places left for this cracker of an event, so email me today or give me a call on 01206 226500 to grab a place! It’s £25 to register, and £100.00 minimum sponsorship commitment. Children over the age of 8 can enter too for a £10 registration fee. You can run, jog, walk, wheel the course, and you can also bring the dog! The course is fully accessible so anyone can join our team!

Yule be sad to miss it!

Jenny

Jenny Poulter, Events Fundraiser

Posted in Charity, Christmas, Chronic illness, disability, Fundraising, London, MS, MS-UK, Multiple Sclerosis, Running, Santa Run, Uncategorized, Volunteering, Walking | Tagged , , , , , , , , , , , , , , | Leave a comment

‘I’m f#*king well going to beat it!’

Media lawyer, Mark Lewis, shares his experience of living with MS in the Channel 4 documentary, ‘In search of a miracle cure’. He visits Jerusalem to receive experimental stem cell treatment as part of a trial that could alleviate his symptoms and slow the progression of his multiple sclerosis (MS).

PATIENT 31

Mark Lewis

The documentary reflects various aspects of living with MS, including the changes it can bring to one’s lifestyle and the emotional turmoil it can cause. Mark’s perception of his MS is that it is something that he can either win or lose, and he is clear that he is going to win.

How do you view your MS? Do you feel that it is a battle that you’re aiming to win day after day, or is this something that is part of you that you don’t need to fight? Perhaps your MS is benign and does not influence your life? There is no single MS experience and each person might find that their emotional responses vary over time.

There are times when your MS might feel overwhelming and you might be frustrated at not being able to control what is happening to your body. MS can also be exacerbated by stress and lead to life-changing decisions such as giving up work. People sometimes struggle to cope with the reactions of their friends and families. Our counselling service can offer you support.

MS-UK Counselling is a specialised service for people with MS. All our counsellors are BACP registered or accredited and have training in working with people with MS. Our sessions are delivered over the telephone so counselling is easily accessible to everyone. Please see www.ms-uk.org/counselling for further information.


What did you think of the programme?

Leave your comments below to share your thoughts…

Posted in Channel 4, Chronic illness, Diagnosis, disability, Hadassah University Medical Center, Hematopoietic stem cell transplantation, HSCT, MS, MS symptoms, MS-UK, Multiple Sclerosis, Multiple Sclerosis News, neurology, New Pathways, Research, Stem Cell Therapy, Stem cell trial, TV Programme, Uncategorized | Tagged , , , , , , , , , , , , , , , , , , | 1 Comment

Channel 4 to air Britain’s top super lawyer Mark Lewis, taking part in MS stem cell trial

PATIENT 31Mark Lewis is the famous lawyer who took down one of the world’s most powerful media moguls, Rupert Murdoch. The show, titled ‘The Search for a Miracle Cure’ is set to air on Thursday 23 November at 10pm.

Filmed over the course of a year with exclusive access, film makers follows the progress of high-profile media, libel and privacy lawyer Mark Lewis as he embarks on revolutionary stem cell trials for multiple sclerosis (MS).

At the age of 25 Mark was diagnosed with MS. There is currently no cure and over the last few years Mark’s condition has worsened.

Now 50, Mark first came to the public’s attention as the lawyer who represented Milly Dowler’s family, and more than 180 hacking victims in the News of the World phone hacking trial – a victory that was followed by the demise of the newspaper. However, stress worsens the symptoms of MS and Mark’s high-profile law career and battle with the tabloids has put his MS on fast forward.

PATIENT 31This summer, Mark began a journey into the unknown when he became Patient 31 of 48 in a revolutionary clinical trial, conducted at Hadassah University Medical Center in Jerusalem by Dr Karussis. The trial is working towards finding a way to halt MS in a bid to help Mark and the estimated 2.5 million people with MS worldwide. Its cutting edge science with huge promise and researchers hope findings could positively impact other neurological conditions such as Alzheimer’s and Parkinson’s disease, and for those who have survived stroke.

PATIENT 31Mark believes this journey to Jerusalem is his last chance as he says, ‘My life is like an egg timer that the sand’s dripping through and the sand’s nearly finished. I want the Doctors to turn it round for me as I know that if someone doesn’t flip it round, that sand is slipping out.’

Here at MS-UK we’re hopeful yet cautious when people talk of ‘miracle cures’. We’ve read the positive results published so far for this trial and will be sure to tune in to hear Mark’s experience. We would also love to hear your thoughts, simply email newpathways@ms-uk.org.


Check out our follow up blog from after the show here.

Posted in Channel 4, Chronic illness, Diagnosis, disability, Hadassah University Medical Center, Hematopoietic stem cell transplantation, HSCT, MS, MS symptoms, MS-UK, Multiple Sclerosis, Multiple Sclerosis News, neurology, New Pathways, Research, Stem Cell Therapy, Stem cell trial, TV Programme, Uncategorized | Tagged , , , , , , , , , , , , , , , , , , , | Leave a comment

Rushmere Golf Club scores a hole in one for MS-UK

Hi everyone,

My name is Darren, and I’ve recently joined MS-UK as the Community Fundraiser. As a golfer, I was thrilled to hear about my first task – visiting Richard at Rushmere Golf Club!

During Richard Ford’s tenure as club captain of Rushmere Golf Club in the past year, he chose MS-UK as his captain’s charity of the year. On 14 November I went along to be presented with the cheque from Richard at Rushmere Golf Club.

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Richard’s sister-in-law Julie lives with multiple sclerosis (MS) and uses the facilities of Josephs Court, the MS-UK wellness centre based in Colchester. One of the many pieces of equipment in Josephs Court is an FES bike (functional electrical stimulation bike). Julie has used the FES bike and seen first-hand the benefits of it for people who live with MS.

The FES bike currently used is now approaching 20 years old and needs replacing so the FES Appeal was launched earlier this year to raise the £22,500 needed to purchase a new one!

During Richards’s time as club captain, himself and the other members of Rushmere Golf Club raised £2,295 which is a fantastic! This contribution will go to our FES Appeal, and has now put the appeal total well over a third of the way there.

I want to say a big thank you to Richard, the club and everyone who has raised this money towards our FES Appeal!

Darren

Darren Fuller, Community Fundraiser


Find out more about the FES Appeal and make a donation today on our campaign page.

Posted in blogging, Charity, Charity of the year, Colchester, Do your own thing, Donations, Essex, exercise, family and MS, Fundraising, health, Josephs Court, MS, MS-UK, Multiple Sclerosis, supporters, Uncategorized | Tagged , , , , , , , , , , , , , , | Leave a comment