MS-UK Easter opening hours

Hello everyone,


Just to let you that due to the bank holidays, we will be closed over Easter…

Friday 30 March

MS-UK and Josephs Court will be closed.

Saturday 31 March

Josephs Court, our wellness centre based in Essex, will be open 9am to 3pm.

Monday 02 April

MS-UK and Josephs Court will be closed.

We will reopen on Tuesday 03 April and the MS-UK Helpline will be available from 9am either via live web chat or via telephone on 0800 783 0518. If you would like information about multiple sclerosis (MS) please do visit the MS-UK website.

For those celebrating, Happy Easter!

Best wishes,

The MS-UK team

Posted in Helpline, Helpline Live Web Chat Service, Josephs Court, MS, MS community, MS-UK, Multiple Sclerosis, Multiple Sclerosis News, Uncategorized | Tagged , , , , , , , , , , , | Leave a comment

Participants wanted – investigating the role of self-perceptions in adjustment to MS

A team in the Department of Psychology at the University of Sheffield are investigating the role of self-perceptions in adjustment to multiple sclerosis (MS).

Researchshout out.png

They are inviting people to take part. Some of the topics discussed in the questionnaires include current experiences of stress, the impact of MS on various areas of life, your self-perceptions, and perceived ability to cope with the difficulties associated with MS.


The study consists of two parts; Each part should take no longer than 20 minutes to complete. After the second questionnaire, participants will be entered into a prize draw to win a £50 (or equivalent currency) Amazon voucher.

The results of the study will be written up and submitted as a doctoral thesis as part of the Clinical Psychology Doctorate (DClinPsy) at the University of Sheffield. Additionally, the study will be submitted for publication in a scientific journal. Information regarding individual participants will not be included and participants will not be identifiable from any reports or publications of the study.


The study was reviewed and approved by the University of Sheffield Research Ethics Committee. Some of the topics discussed in the questionnaire may be distressing as they ask about current and past experiences and feelings. Contact information for listening and support services will be provided at the end of the study.


If you are interested in taking part, you can find out more about the study online.

Posted in MS, MS community, MS-UK, Multiple Sclerosis, Multiple Sclerosis News, Research, Uncategorized | Tagged , , , , , , , , | Leave a comment

MS-UK is closed this morning…


Just to let you know we’re closed this morning for all staff training.

Wed am

You can email us and we’ll get back to you when we return!

Thank you,

The MS-UK team

Posted in MS, MS-UK, Uncategorized | Tagged , , , | Leave a comment

Guest blog: Beast from the East

In her latest guest blog Joanne discusses the weather and multiple sclerosis (MS) and coping with the Beast from the East…

jo picThe Beast from the East has arrived! I’m recovering from a relapse (MS for sh&t!) where my mobility has been challenged, I’ve fallen several times (last time at the cinema whilst moving to let someone pass, think I deserve an Oscar for my performance!) and experiencing tons of fatigue (if I got paid to sleep, I’d be rich) so my writing is on the back burner.

I was inspired to write about how the weather affects those like me. It’s been on my mind. I have thought how reduced energy levels and mobility doesn’t wash with this weather, how limited I am but more importantly how I have to think differently and be more prepared.

The weather presents many challenges. If you flick on the TV, there are shots of the level of snow, schools closed, difficulty travelling, travel disruption and forecasts for how long we are to expect this harsh winter weather. And it doesn’t help with a storm on the way. Many other countries experience snow. They are prepared. Ours grinds to a halt, although in its defence, this harsh weather is the worst I’ve seen for a while. Little man loves the white stuff. So here are my tips for handling bad weather for those in my boat, or anyone really.


You’ll probably stay in at home. For little man, I stock up on craft kits, board games, films for indoor fun ( I can recommend Peppa’s Cold Winter Day and Peanuts movie for little man and it doesn’t drive me nuts) and books. Reading to little man is a great time filler. Ask others to buy children’s magazines if you’ve not got any in. They usually have stories, colouring and sticker fun.

When travelling, I make sure I have food, drink, toilet stuff (she wee/incontinence pads, travel potty, toilet roll, baby wipes, carrier bag to put things in, gross but true!) things to entertain little man, warm clothes and a blanket. We’ve been putting a little man’s blanket on the radiator to place on him during car journeys.

Be safe

My mobility is bad and I’ve fallen a few times. The safest option is staying at home but it isn’t always viable. Slippy snow and ice isn’t great for anyone but when you have fallen and use a walking stick (doesn’t work well in snow!) this weather is super scary. I wear shoes I know that can help and am buying shoe grips.

Don’t put pressure on yourself 

It’s OK to feel like you can’t be bothered. But little man is so excited. He’s seen snow before but not on this scale.  I close my eyes and little man wakes me by shouting “kick a ball” or “go outside Mummy”. My husband says he’ll stick me on a sledge! (I’m thinking about weight restrictions!) It’s heart breaking when you have little energy to lift your bum off the sofa, let alone play in the snow. Give yourself a break, if you can. I’m saving energy for the weekend as my husband says he’ll be my chaperone. I’ve realised that asking for help is not a sign of weakness – so family and friends have had fun in the snow with little man, giving me a chance to recharge. I think they like it!

Protect your mind

Asking for help helps you to rest but there is the realisation that you can’t play in the snow like yesteryear. Emotions come to a head. Grief. Anger. Frustration. Envy. Social media has a lot to answer for that. Don’t get me wrong it’s lovely to see what others are doing on their snowy days but it’s a reminder that you have limited mobility. I’ve cried a lot over the last few days because I want to be the one to play in the snow with little man. I will go out at the weekend with my husband around. In the interim, try not to be alone, hook up with others whether it’s friends who can come to you (I organised a play date today), speaking to social media contacts ( I asked my local MS Society group for best shoe grips recommendations) and plan for brighter days ( I’m thinking of summer holidays).

Be more hygge

In the interim, snuggle down, grab a blanket, hot chocolate and biscuits may not be great for the waist line but I’m still scoffing and watch films. Be like a Dane until the bad weather goes away.

Stay safe everyone! I’d love to know your tips?


#ms #multiplesclerosis #spoonie #chronicillness #fatigue #msfatigue #energy #disabled #mobility #balance #energy #flare #relapse #parenting #mummy #mum #mom #children #badweather #snow #ice #slip #fall #beastfromtheeast #writing #blog #hygge #mind #emotions #netflix #peppapig #cbeebies #energy #flare #parenting #mummy #daddy #mum #mommy #mom

Read more/follow:

poorlyparents on Facebook

@Mummywithmsjmhc on Twitter


Posted in Anxiety, blogging, Chronic illness, disability, family and MS, Fatigue, Guest blog, MS, MS symptoms, MS-UK, Multiple Sclerosis, neurology, parenting, Uncategorized, wellbeing, Winter | Tagged , , , , , , , , , , , , , | Leave a comment

Lottery numbers!

Hi everyone,

Well our first make a smile lottery draw has taken place, and here’s the results for Friday 02 March…


Congratulations to everyone who has won! You can find out all about the lottery and how to play in aid of MS-UK on the make a smile website – good luck for next week!

Best wishes,


Jill Purcell, Fundraising Manager

Posted in Charity, Fundraising, MS, MS-UK, MS-UK 25th anniversary, Multiple Sclerosis, supporters, Uncategorized | Tagged , , , , , , , , | Leave a comment

Guest blog: Shake off the winter months with a nutrient spring clean

In this guest blog, Dr Carrie Ruxton, from the Health and Food Supplements Information Service (HSIS), shares her expert advice for embracing spring with a nutrient overhaul…

Carrie Ruxton approved.jpg

March sees the first day of spring, but in the UK it can often still feel like winter! The dark, cold months at the beginning of the year can have an impact on our energy levels, immune system and cognitive function, so the start of spring is the perfect time to shake off the winter with a nutrient spring clean.

Dr Carrie Ruxton, from the Health and Food Supplements Information Service (HSIS), says: “We can’t magic up more sunlight in the UK but there are ways we can adapt our diets to get our health back on track for the spring and summer.

My five tips are;

  1. Take a multivitamin, or a supplement containing vitamin C and zinc. Vitamin C and zinc, as well as vitamin D, are known to support normal immune function. When Vitamin C and zinc are taken in combination at the start of a cold, they can knock a couple of days off your symptoms[1],[2]. Vitamin C can also be found in kiwi and citrus fruits, while fish and meat are a rich source of zinc
  2. Energy levels can feel low as winter recedes. B vitamins have a vital role in helping the body to extract energy from our foods[3], particularly carbohydrates. A ‘B complex’ supplement, containing thiamin, riboflavin, B6, B12, folic acid and niacin is a good option, particularly if you are vegetarian or vegan. B vitamins are found naturally in meat, fish and eggs
  3. Perceived energy can also be boosted by taking daily exercise[4], such as brisk walking, dancing or gym classes. This creates endorphin chemicals in the brain which make us feel more positive. Support your active lifestyle by choosing food and drinks rich in polyphenols which support blood vessel function, such as colourful fruits and vegetables, orange juice, tea and dark chocolate
  4. Mental function depends on the ease of chemical messages jumping from one brain junction to another, called synapses. Studies show that the long-chain omega-3 fatty acids found in marine oils help to make this process more effective[5]. Omega-3s can be found in oily fish, such as salmon and mackerel, or fish oil supplements
  5. While we can feel more sleepy and sluggish in the winter and spring, this can often be helped by getting better quality sleep, not necessarily more sleep! Switch off all screen-based entertainment at least an hour before bed, do some relaxing meditation[6] and then enjoy a warm milky drink. Dairy foods contain an amino acid, called tryptophan, which the body uses to make serotonin and help regulate sleep. You can also take a supplement containing 5-HTP.

About HSIS

HSIS (the Health and Food Supplements Information Service) is a communication service providing accurate and balanced information on vitamins, minerals and other food supplements to the media and to health professionals working in the field of diet and nutrition.

Multiple sclerosis and diet and nutrition

Find out more about diet and nutrition in our Choices leaflet on our website.

Posted in blogging, Diet, Guest blog, health, MS, MS community, MS-UK, Multiple Sclerosis, Uncategorized | Tagged , , , , , , , , , , , | Leave a comment

Take our annual survey today!

Hello,vlm e-news image1 (1).png

Every year we run our annual survey, asking you to tell us a bit about yourself. Last year hundreds of you took part – thank you!

We run this survey every year so that we can make sure we are always providing services that really meet the needs of people affected by multiple sclerosis, and so that we ensure we are reaching as many different people as possible that want information or support.

In the survey we’ll be asking questions all about you – from how old you are to what MS-UK services you may have used in the past. Everything is completely anonymous, and we won’t be asking you for any contact details at all.

BUTTON survey webpage

Thank you so much for taking part!

Best wishes,


Laura May, Marketing Manager

Posted in Carers, Caring, Charity, Chronic illness, disability, MS, MS-UK, MS-UK Services, Multiple Sclerosis, neurology, Survey, Uncategorized | Tagged , , , , , , | Leave a comment