MS Auckland invite you to New Zealand!

Hi everyone,

You may remember earlier in the year when ms. Auckland got in touch about an event they are hosting – Clash of the Titans. Well, believe it or not the time is nearly here, as the event will be taking place in June 2017 at Eden Park!

MS170077 COTH Poster - No Crops

This will be a grand event featuring the hilarious Jeremy Corbett as MC and many well-known rugby enthusiasts, including the very special Sir Graham Henry.

You can now also watch the YouTube clip of the radio ad that Phil Gifford has done for the event – and Phil will be there on the night!

So, if you’re venturing to New Zealand next month, and manage to attend this event, do let me know – I would love to see the photos!

Best wishes,

laura sig

Laura May

Marketing Manager, MS-UK

Posted in Auckland, disability, Disabled living, MS, MS-UK, Multiple Sclerosis, New Zealand, Rugby, Uncategorized | Tagged , , , , , | 1 Comment

Runners stories – watch the video!

Hi everyone,

In April, over 100 people took part in the Virgin Money London Marathon for team MS-UK, raising money to help us continue our work supporting people affected by multiple sclerosis.

I would have loved to share all of their stories, but the film may have been a bit too long! So, instead I hope you’ll enjoy this short video of runner stories.

If you missed out on entering the 2018 ballot last week, don’t forget you can apply for one of our Gold Bond places by visiting our website.

Best wishes,

Jill Purcell logo

Jill Purcell, Fundraising Manager

Posted in Charity, Fundraising, Gold Bond Places, London, Marathon, MS, MS-UK, Running, Uncategorized, Virgin Money London Marathon | Tagged , , , , | Leave a comment

World MS Day is coming!

Logo_Stacked_colour_2017EN.jpgHi everyone,

This month sees World MS Day (Wednesday 31 May), and here at MS-UK we will be celebrating throughout the day on Twitter and Facebook, to raise awareness of multiple sclerosis and hopefully share some top tips from you!

Got some inspiration for how to handle incontinence? Know a great way to ease neuropathic pain? Whatever your top tip for living life with MS, we want to hear from you!

Email us your top tips before Friday 19 May, to make sure we include you!

WMSD website graphic.jpg

We will be using the hashtag #LifewithMS throughout the whole day, so do join in!

I look forward to sharing your tips on the day, and thanks for being part of the conversation,

Best wishes,

john_sig2

John Habkirk

Digital Officer, MS-UK

Posted in Charity, Chronic illness, Diagnosis, disability, Disabled living, DMTs, FaceBook, family and MS, Helpline, HSCT, Hyperbaric Oxygen, Integrated Medicine, MS, MS drugs, MS symptoms, MS-UK, Multiple Sclerosis, neurology, Twitter, Uncategorized, welfare, wellbeing, Wellness, World MS Day | Tagged , , , , , , | Leave a comment

Guest blog: Mont Blanc is in sight!

In this guest blog from Tom Carr, we get a quick update as he nears Mont Blanc. Tom is climbing Mont Blanc, and then skiing all the way down again for his epic fundraising challenge in aid of MS-UK!


Well we’re off….
Sitting in the car park at Eurotunnel on our way to Chamonix for the epic challenge.
Having returned from Everest base camp just 10 days ago I hope that I’m fully acclimatised, but possibly work to do early next week.


I’ll meet my guide tomorrow afternoon, with our first ascent on Monday.

Camping out Monday night halfway up Mt Blanc. We then descend Tuesday hopefully on skis. This is to help with acclimatisation.

So as they say… watch this space! But for now its an overnight pit stop at a lovely town called Bleze!


You can sponsor Tom today on his JustGiving page, or find out more about joining him in an adventure of your own by visiting our fundraising webpage!

Posted in Charity, Do your own thing, Donations, Fundraising, Guest blog, Mont Blanc, MS, MS-UK, Multiple Sclerosis, Uncategorized | Tagged , , , , , , , , | Leave a comment

Helpline opening hours survey

Hi everyone,The MS-UK Helpline Team, Kim, Ryan and Laura
We wanted to let you know about our latest survey…we would like to know your thoughts about our Helpline opening hours.
Currently the MS-UK Helpline is open Monday to Friday 9am to 5pm and is available via the freephone telephone number (0800 783 0518), live web chat or email.
The Helpline is staffed by trained advisors (that’s us!) to offer all the information you may need to make your own decisions.
We are reviewing our opening hours and exploring whether there is demand for us to extend those hours to provide a service through existing and maybe new channels.
Please take the time to complete our survey to help us to make plans for the future.
Helpline hours survey advert.jpg
Thank you so much for helping us with this research, your opinion will help us shape this service for the future!
Best wishes,
Kim, Ryan and Laura
The MS-UK Helpline team
Posted in benefits, Carers, Caring, Charity, Chronic illness, Diagnosis, disability, Disability Rights, Disabled living, DMTs, family and MS, Helpline, Helpline Live Web Chat Service, MS, MS drugs, MS symptoms, MS-UK, Multiple Sclerosis, neurology, Personal Independence Payment, Survey, Uncategorized, welfare, wellbeing | Tagged , , , , , | Leave a comment

The marathon ballot is now open!

Hi everyone,MS-UK_Marathon_2017_Large_020

It’s 354 days until the next Super Sunday, and all this week the Virgin Money London Marathon ballot will be open, so if you fancy running one of the most iconic cities in the world, don’t forget to enter!

The public ballot entry system for the 2018 run is open until 17.00 this Friday, 05 May 2017.

Visit the Virgin Money London Marathon website to enter today, and good luck!
Best wishes,

Nick

Nicholas Adams

Fundraising Assistant, MS-UK

 

 

Posted in Charity, Do your own thing, Fundraising, London, Marathon, MS, MS News, MS-UK, Multiple Sclerosis, Uncategorized, Virgin Money London Marathon | Tagged , , , , , , , , , , , , | Leave a comment

MS Awareness Week thank you!

Hi everyone,

I just wanted to say a big thank you for supporting MS-UK during MS Awareness Weekblog image 020517.png by adding my #SmilesWithMyles twibbon to your social media profile pictures!

Over 300 of you lovely people added my twibbon, and it all helped us to spread a positive message throughout the week – thank you!

MS-UK published lots of information about multiple sclerosis to celebrate MS Awareness Week, including Samreena’s real life story about HSCTTaflyn’s story about living life to the full and an infographic about the invisible symptoms of MS, so do take a read of the MS-UK blog.

If you missed last week, you can sign up to the MS-UK e-newsletter to stay up-to-date about future campaigns such as World MS Day.

Big bear hugs!

Myles signature - shadows into light font on Canvas

Myles, the MS-UK mascot

Posted in #SmileswithMyles, Charity, Chronic illness, disability, e-newsletters, Hematopoietic stem cell transplantation, HSCT, MS, MS Awareness Week, MS-UK, Multiple Sclerosis, Myles, Myles the bear, Uncategorized, World MS Day | Tagged , , , , , , , , , , | Leave a comment