Guest blog: Christmas and MS

In her latest guest blog Joanne writes about Christmas and multiple sclerosis (MS)…


Joanna christmas blog smallSorry it’s taken me so long to write. I’ve been battling bugs and the MonSter has come out with vengeance.

With Christmas only around the corner, I put my best foot forward (left if you’re asking!), grab my stick (I’ve realised it doesn’t work well in winter) put some lippy on and carry on Christmas starts in full swing. I may look like I’m in the Christmas spirit, but on the inside, my MS is bubbling away.

I’m secretly wanting peace and quiet.

I probably sound all bah hum bug as on the one hand, it is the most wonderful time of the year but it also feels like an assault course. Twinkly lights, the smell of evergreen, secret eating of cheap chocolate coins, knowing the big FC is coming soon and everyone running around like headless chickens.

Little man is still too young to fully understand but he does love Christmas like his mummy.

Christmas and MS don’t mix. MS is holding me back. I’ve had to scale back. What am I doing to make Christmas run as smoothly as possible:

Keep calm and carry on

Don’t stress out. With pressure to have this perfect Christmas, whatever perfect is, I try to ease the pressure by focusing on what’s important and remembering I live with MS, that’s pressure enough. Remember it’s only one day. Don’t over commit yourself. Do what’s right for you.

Rest

Tiring for all, but exhausting for you. There’s more travelling whether it’s seeing folks or going out and about. Food and drink topped with long days have their toll. Don’t ignore any vegging opportunities but plan rest. Like Christmas presents, MSers need our batteries charged too!

Cold

Blooming heck it is cold! It’s snowed recently, dark days and the heating is on full whack, so I’m feeling more tired, the cold is making my MS worse, getting out of a warm shower is my cryptonite and if someone sneezes, I’ll probably get the germs. Many things to contend with, so the girl guide in me is being even more prepared. I’ve bought supplements, wear lots of layers and my wheat toy monkey is on standby for placing on my MS mad hands or warming me up. Plus little man thinks it’s funny seeing him spin round in the microwave.

Focus 

I can’t write, so no card writing. Annoying but probably a blessing. I try to focus on what’s important, rather than what I can’t do. Charities get my card money instead of the card manufacturers. I insist on hubby having time to help, whether it is present wrapping or shopping. Instead of list writing, I use the internet to save all my gift ideas and finally shop. It also helps with requests for buying for little man.

Magic

Christmas is about many things, for me, it’s also about random acts of kindness.

When little man saw the big man, the kind staff made it easier for me. Obviously you’d like it to be magical (and value for money) but I was also thinking about me. Not judging my mobility, was the cherry on the cake.

Recently I emailed ahead to get a table at a local bar. The bar reserved the table, so I could sit and enjoy drinks with ease. My friends have cooked meals and brought as a surprise. Many acts of random kindness. Before I wanted handbags or shoes, now I dream of kindness ( I still have the bag and shoes, although make them lovely flat ones!) So as the saying goes, I hope this isn’t just for Christmas.

So whatever your Christmas brings, let’s hope it’s happy, merry and kind. Remember kindness costs nothing (not like a drone at £500!)

Health and happiness to all.

Happy Christmas!

Joanne

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About MS-UK

MS-UK was established in 1993, and is a national charity dedicated to empowering people with multiple sclerosis to make the most of today, and live life to the full. We put people affected by MS at the heart of our work. We provide high quality, professional services to support people living with multiple sclerosis, and we listen to people affected by MS.
This entry was posted in blogging, Charity, Christmas, christmas cards, Chronic illness, disability, Disabled living, family and MS, Fatigue, Guest blog, MS, MS symptoms, MS-UK, Multiple Sclerosis, neurology, parenting, Uncategorized, wellbeing, Winter and tagged , , , , , , , . Bookmark the permalink.

2 Responses to Guest blog: Christmas and MS

  1. Pingback: Carry on Christmas – Poorly parents, mummy with MS

  2. Honnie says:

    Oh my goodness yes! I have a three and a half year old, so I understand. Went to my grandmothers 90th yesterday in 36 degree heat (I live in Australia) and it wiped me out! The driving, socialising and heat have taken their toll. Mum has decided to have Christmas at her place again and do most of the work so it’s easier for me. Also we used to go out for lunch as someone else did all the work and dishes, but we decided it’s not the same and have reverted back to our homes. That’s always an option though… I love Christmas too, and figure it’s so worth wiping you out for a few days… 😁😂❤️🎄

    Like

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