Guest blog: Asking for help

In her latest guest blog Chloe deliberates over ‘over-doing it’ with multiple sclerosis (MS) and how she has learned she has to ask for help…


chloe_new_300Ah, the havoc kid’s parties can create. Not only is the house a tip afterwards, but they shake me right to the core. Lib was 6 the other day, and we had not one, but two parties for her – a family one, and a friend’s one. I remember last year saying I would never do two again, but low and behold I did not heed my own words this year.

I love them, I really do, but the planning, executing and aftermath takes it toll. I did a hell of a lot of baking (which again, I love) but that ultimately means a lot of standing in one place. Not good for the MS! Or in other words – strike 1. Then there’s the running around at the actual parties – strike 2 for the MS.

Strike 3 comes from the bipolar. Running on adrenaline and manically planning things means I tend to become too high because my body can’t regulate things properly. And what comes up, must come down, so after everything was done, I crashed on an epic scale and ended up in bed for nearly 3 days. I became tingly and fatigued, and was suffering from exhaustion and depression. So yeah, another example of how everything takes it’s toll.

It wasn’t a serious relapse, so I didn’t get in touch with the MS team and I knew what it all stemmed from, but in my mind it was what I like to think of as a minor-relapse. One that will ultimately get better after a few days of rest. And it did, so everything is fine. But it did get me thinking about how fragile life with MS can be. Just a simple thing like organising a birthday can derail things on an epic scale.

But how am I meant to cope with life as a Mum of two kids and still maintain an even keel on my MS?

Life with kids is hectic, and not exactly predictable. I guess the answer is help. Asking for it, which I confess I’m really bad at doing, and accepting it when it’s offered. Plus, and perhaps more importantly, I need to accept that perhaps I can’t do what ‘normal’ Mums can do.

Working around this is going to be tricky for me, mainly because it means that at 6, Lib is now old enough to take on board things that are explained to her. So is it finally time to have a ‘conversation’ with her, or do I just carry on casually mentioning my MS in passing in the hope that it sinks in? It’s a tricky one for sure.

Chloe

You can follow Chloe’s blog at https://tantrumsandtingles.blogspot.com/

Download our ‘Am I having a relapse?’ form from our MS symptoms page.

Advertisements

About MS-UK

MS-UK was established in 1993, and is a national charity dedicated to empowering people with multiple sclerosis to make the most of today, and live life to the full. We put people affected by MS at the heart of our work. We provide high quality, professional services to support people living with multiple sclerosis, and we listen to people affected by MS.
This entry was posted in blogging, Chronic illness, Depression, disability, Disabled living, family and MS, Fatigue, Guest blog, health, Mental Health, MS, MS symptoms, MS-UK, Multiple Sclerosis, neurology, parenting, Uncategorized, wellbeing, Wellness and tagged , , , , , , , , , , . Bookmark the permalink.

3 Responses to Guest blog: Asking for help

  1. Judi says:

    What’s an M.S team x

    Like

    • Paul Goode says:

      I would assume that she means her MS specialist nurse etc., who is always my first port of call when I am having difficulties.

      Like

    • MS-UK says:

      Hi Judi, an MS team could be different for different people, depending on what is available in the area. An MS team may include:
      • Neurologist
      • MS nurse
      • Speech and language therapist
      • Counsellor or neuropsychologist
      • Your GP
      • A neurophysiotherapist
      • Occupational therapist
      If you would like to chat to a member of our helpline for more info, just visit http://www.ms-uk.org.org/helpline or give us a call on 0800 783 0518.
      Best wishes, Laura from MS-UK

      Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s