Guest blog: Summer holiday musings

In her latest guest blog Chloe describes her time over the school summer holidays and the joys of a ‘staycation’…


Chloe photo for mum blogWell, they’re over, but between you and me, I secretly like the summer holidays. Sure it’s incredibly tiring, but it makes me far more creative in my parenting. I get stuck in a bit of a rut with the kids sometimes and school holidays gives us more options.

Instead of me having to rely on weekends (many of which I’ve been ill) to do fun stuff with the kids, in the holidays we can be spontaneous and head out when I’m feeling ok, which is always a bit of a weight off my mind.

Overall we had a really successful summer holiday this year. My stamina has been much better since starting Tysabri, so I felt able to make the most of it. Sure there were a few blips, but then that’s life with MS for you.

So the holiday was full of fun, frolics, and rest for me whenever I could. Like most people, having a holiday away from home is always a must.

I’ve never attempted to travel abroad with the children though. It seems far too daunting. I’ve had a couple of instances where travelling has really flared up my MS, so navigating an airport especially is a bit terrifying to me, let alone doing it with two kids in tow. There’s just so much walking, standing and hanging around, and though last time I flew I did accept the help from the airport (use of a wheelchair, etc) it was still a bit of an ordeal. Add to that the packing beforehand, and the stress of travelling with children, and in my mind’s eye it all equates to a nightmare experience.

Maybe I’ve built it up in my head too much, but I’d rather discover the delights of the UK until the kids are much older.

So this year we went to Wales (twice!) and we had a great time.

Holidays are hard work though.

On our most recent holiday we felt like we had to the get the kids out of the house every day, which on reflection is something I wouldn’t do at home. I’m lucky if we managed one day trip a week at home so all of these adventures meant I was greatly in need of some rest halfway through and ended up being bed-ridden one day.

I stupidly didn’t pack my mobility scooter, because I felt confident and well when I packed at home, but I really could have done with it to take the pressure off. This is a major thing that I need to get my head around. If in doubt I should always use my scooter. There’s no point in pushing it and hoping that I can muddle through. The scooter is there to help, and I need to use it for self-preservation, not just as an aid when I‘ve reached rock bottom.

Ironically we went to a place called Folly Farm which was incredibly accessible for scooters. I notice these things now, whenever I travel anywhere, and it’s amazing how hit and miss it can be. Some places just aren’t suitable for disabled visitors which is a real shame.

But we’re back home now, and getting ready for the next school term, and for things to calm down a bit. I’ve learnt that getting back into a routine is the key…not just for my health, but for my sanity!

Chloe


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About MS-UK

MS-UK was established in 1993, and is a national charity dedicated to empowering people with multiple sclerosis to make the most of today, and live life to the full. We put people affected by MS at the heart of our work. We provide high quality, professional services to support people living with multiple sclerosis, and we listen to people affected by MS.
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