Monthly Archives: June 2017

Attending the Patient Information Forum conference

Hello, Last month, I was one of the guest speakers at the Patient Information Forum conference talking about our experiences of Involving Users in Developing Health Information. Professor Theo Raynor, University of Leeds and Luto Research, set the context for the … Continue reading

Posted in blogging, Charity, Choices Leaflets, disability, Disability Rights, Disabled living, Helpline, MS, MS community, MS-UK, MS-UK Virtual Insight Panel, Multiple Sclerosis, neurology, Uncategorized | Tagged , , , , , , , , , , , , , | Leave a comment

Last chance to complete our Choices survey!

Hi everyone, Tomorrow we’ll be closing our Choices leaflet survey, so if you would like help us shape them please do complete our short survey! The questions are about complementary therapies, Personal Independence Payment (PIP) and cannabis and MS. Please be … Continue reading

Posted in Cannabis, Charity, Choices Leaflets, Chronic illness, Complementary therapies, Helpline, MS, MS-UK, Multiple Sclerosis, neurology, Personal Independence Payment, Survey, Uncategorized | Tagged , , , , , | Leave a comment

Last chance to join us at the British 10k!

Hello, Summer has finally arrived and what great weather we are having…perfect running weather! Team MS-UK stands at 25 runners for the British 10k, but we need more! Come and join us, and every penny you raise will help us … Continue reading

Posted in British 10k, Charity, Fundraising, London, MS, MS-UK, Multiple Sclerosis, Running, Uncategorized | Tagged , , , , , , , | 2 Comments

The Summer Ball is here!

Hi everyone, Well, the evening is nearly upon us…tonight we will be celebrating at our annual Summer Ball! For the fifth year, some hundred people will gather in the heart of Constable Country to enjoy an elegant evening of fine … Continue reading

Posted in Charity, Do your own thing, Donations, Essex, family and MS, Fundraising, MS, MS-UK, Multiple Sclerosis, Music, Summer, Summer Ball, Uncategorized | Tagged , , , , , , , , , , , | Leave a comment

Heat and multiple sclerosis, what can you do.

Many people with MS are experiencing a temporary worsening of symptoms during this current heatwave. You might feel fatigued, or experience an increase in pain, or feel cognitive symptoms are worse. A change in body temperature can also give rise … Continue reading

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Guest blog: Robert’s adventure with Oceans of Hope… So where was I?

In May we continued the series of guest blogs from Robert Munns. Robert is involved with the Oceans of Hope Challenge, which is an adventure like no other for people affected by multiple sclerosis. In this series, Robert is taking … Continue reading

Posted in Diagnosis, disability, Disabled living, Galápagos, Guest blog, MS, MS-UK, Multiple Sclerosis, Oceans of Hope series, Pacific, sailing, Uncategorized, wellbeing | Tagged , , , , , , , | Leave a comment

Can you help us update our Choices leaflets?

Hi everyone, We are refreshing our Choices leaflets for people affected by multiple sclerosis (MS) and we need your real life experience to help us shape them! If you have a diagnosis of MS, it would be great if you … Continue reading

Posted in Choices Leaflets, Chronic illness, disability, Disabled living, Helpline, Helpline Live Web Chat Service, MS, MS drugs, MS symptoms, MS-UK, Multiple Sclerosis, neurology, Survey, Uncategorized, wellbeing, Wellness | Tagged , , , , , | Leave a comment