Clinical Nurse Specialists in MS, Julie Webster and Helen Willis give their top tips…
- Make notes before you come to your appointment with what you want to discuss. Bring specific questions and/or a diary of symptoms with surrounding circumstances
- Bring a list of medications you are on, the dosage and regularity. Not just MS drugs either – any medication you are taking
- Bring someone with you – It never hurts to have a second pair of ears
- During the appointment say the top three things that are bothering you
- You don’t have to follow the advice given, they are just suggestions. It is a two-way conversation. You will not be penalised for not taking the advice
- Before you leave – check. Have you understood everything? Have all your questions been answered? Do you understand what is going to happen next?
- If you have had a blood test ask how and when to get results?
- Don’t be afraid to email or call the MS nurse if you want your blood test results
- Check your personal details are up to date, GP, address and telephone number
You should be seen by your MS nurse every year, but if all is well most can do a review over the phone. If you are on a disease modifying treatment you should be seen every 3-6 months by your nurse or consultant.
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