In 2016, Simon Gauge ran the Virgin Money London Marathon for MS-UK.
But he really ran it for his brother, Phil.
Phil passed away just last month. In this blog, Simon remembers his brother’s courage and quick wit, and shares his hopes for the future…
‘I contacted MS-UK to let them know that unfortunately my brother Phil, who has bravely fought MS for the past 13 years, passed away in the early hours of Sunday morning aged 43.’
Raising a whopping £33,000 for the charity by undertaking the marathon last year, Simon was inspired to take on the challenge by the bravery and courage of his brother who lived with primary progressive multiple sclerosis.
‘Phil was barely able to speak but he never lost his sense of humour.
He was my inspiration’
‘I took on the marathon because I wanted to raise money to provide help and support for people with MS whose family may not have the means to assist them in the battles they face on a daily basis.’
Simon and Phil’s parents dedicated their lives to supporting Phil to remain independent. ‘Phil was very lucky…he died in his own adapted bungalow, with family and a fantastic care team around him (he had 24 hour care). He had the worst form of the disease but I can honestly say he was happy right up to the very end.’
‘Phil always said he did not suffer from MS but had to learn how to live his life as full as possible with his MS.’
Looking to the future, Simon and his family are focusing on remembering Phil for the positive, hopeful man he was. They would like to ensure his legacy lives on.
‘I contacted MS-UK to let them know that any donations will be going to the charity. Anyone can get multiple sclerosis and I want charities such as MS-UK to be there in the future to give the information and support needed to anyone affected.’
Simon is also planning to sell Phil’s fully adapted bungalow to someone else who may benefit from its many adaptations.
Simon says, ‘It is a fully adapted disabled bungalow with a wet room and separate bedroom for carers to stay in. Rather than sell it to anybody we would like to sell it to somebody that it could benefit from it and enable that person to continue to live life independently.’
About the bungalow
137 Holme Court Avenue, Biggleswade, Beds SG18 8PA
Originally the Bungalow was a two bedroom Bungalow but has been fully reconfigured to cater for a disabled person requiring the use of a wheelchair and requiring a 24 hour care package.
The Bungalow has small gardens to the front and rear. You enter via the front door (set up so it can be remotely opened via a Possom device or similar) into a spacious entrance hall. To the left is a lean to overlooking the rear garden. To the right is a wet room with a sliding door for easy wheelchair access. It is large enough to fit a wheelchair and hoist. Straight ahead is a double bedroom and via the hallway you enter the lounge that has a fully equipped kitchen coming off of it and a storage room.
Value around £270,000
MS-UK sends our thoughts and wishes to Simon and his family, and we would like to thank him for sharing such as positive message at this time.