Correction to criteria for exergaming study

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You may recently have read our blog post ‘Find out about taking part in the exergaming project by the University of Essex…’  regarding a study the University of Essex is conducting looking at how exergames can help with some MS-related symptoms. Unfortunately there was an error in the inclusion criteria. The original post stated that participants must have a Patient Determined Disease Steps of 3 to 5, this should have stated 0 to 5. 

Please see below corrected information
The trial will take place at MS-UK in Essex, for eight weeks, beginning in August 2016. We are looking for 20 people to take part in the study. 

Who can take part?
There is inclusion criteria to take part in this study. All participants must:

  • Have a definitive diagnosis of MS
  • Be ambulatory (i.e. able to walk aided or unaided)
  • Have a Patient Determined Disease Steps of 0 to 5 

Patient Determined Disease Steps
0 = functionally normal with no limitations on activity or lifestyle. Patients may have minor abnormality on examination, such as nystagmus or an extensor plantar. The course is relapsing-remitting with a return to baseline with or without treatment. These patients are not treated with any ongoing symptomatic therapy for MS.

1 = mild symptoms or signs. These patients have mild but definite findings such as sensory abnormalities, mild bladder impairment, minor incoordination, weakness, or fatigue. There is no visible abnormality of gait.  The pattern of disease is relapsing-remitting, but patients may not have a full return to baseline following attacks. These patients may use ongoing symptomatic therapy such as amantadine, baclofen, or oxybutynin. 

= the main feature is a visibly abnormal gait, but patients do not require ambulation aids. The pattern of disease is relapsing-remitting or progressive. 

= intermittent use of cane (or other forms of unilateral support including splint, brace, or crutch). These patients use unilateral support primarily for longer distances, but are able to walk at least 25 feet without it. The pattern of disease is relapsing-remitting or progressive. 

4 = these patients are dependent on a cane or other forms of unilateral support and cannot walk 25 feet without such support (eg, these patients may hang on to furniture inside their homes or touch the wall when walking in clinic). Patients may use a scooter for greater distances (eg, malls). The pattern of disease is relapsing remitting or progressive. 

5 = patients require bilateral support to walk 25 feet (eg, two canes or two crutches or a walker). They may use a scooter for greater distances.  The pattern of disease is relapsing-remitting or progressive.

What will happen?
We are looking for 20 people:

  • 10 people will act as a control group. This involves completing some assessments and questionnaires and the beginning and end of the study
  • 10 people will come along to MS-UK and play the game for around 20 – 40 minutes, twice per week for eight weeks. You’ll also have to complete some assessments and questionnaires at the beginning and end of the study

It is hoped that this study will prove playing these games helps people with MS, and pave the way to funding a larger-scale trial in the future. If you can spare the time to take part and you meet all of the criteria, please get in touch today and sign up!

Thank you,

Mike sig

Michael Kinton

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About MS-UK

MS-UK was established in 1993, and is a national charity dedicated to empowering people with multiple sclerosis to make the most of today, and live life to the full. We put people affected by MS at the heart of our work. We provide high quality, professional services to support people living with multiple sclerosis, and we listen to people affected by MS.
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