We recently ran the 555 Neurology Project with Healthwatch Essex and the Essex Neurology Network. The people who attended our focus groups described their diagnosis conversation to us, with a range of themes emerging.
Some had been guided through the diagnosis conversation expertly by neurology professionals, and some felt steps had been missed out and the journey could be improved.
I wanted to share this quick snapshot of the 5 themes:
While there are five key themes, participants felt strongly that these are not mutually exclusive, and that each needs to be acknowledged at the same time – during that diagnosis conversation.
If you would like any support with diagnosis, or just have some questions, do contact the MS-UK Helpline via our live web chat service or by calling 0800 783 0518. You can also order a copy of our newly diagnosed booklet by visiting www.ms-uk.org/newdxpack.
Thank you again to everyone who took part in the 555 Neurology Project, we couldn’t have done it without you!
Marketing Manager, MS-UK