Personal Independence Payment – some resources you may wish to know about….

film1Here at the MS-UK Helpline we’ve noticed that we have had a lot more calls lately from clients about Personal Independence Payment (PIP). This is not entirely unexpected as PIP has been in the news a lot lately. There has been confusion over proposed changes to PIP assessments and the fact that the government is now not going to implement their proposed change to the benefit after all.

We’ve also noticed that many people who have been receiving Disability Living Allowance (DLA) on ‘lifetime’ awards are only now receiving letters from the Department for Work and Pensions (DWP) inviting them to claim Personal Independence Payment (PIP).

We thought that we would share with blog readers some of the useful tools and guides we use when helping clients.

One of the great resources that we use when helping clients with welfare rights issues is the ‘Disability Rights Handbook’ published by Disability Rights UK. Disability Rights UK is a national charity run by and for people with lived experience of disability or health conditions. MS-UK are a member organisation working with Disability Rights UK, meaning that along with over three hundred and twenty other organisations we can access their high level benefits support service. This means that if we cannot answer a client’s benefits enquiry ourselves we can tap into the expertise that is needed.

The Disability Rights Handbook is updated yearly and is a detailed guide to both disability benefits and independent living. Although available to the public, the Handbook is mainly used by advisors as it can be quite complicated to read due to its thorough and incredibly detailed content. The Handbook is an essential tool for our Helpline team!

Disability Rights UK also produce some really useful factsheets and guides which are all listed and available to download from their website. One of the guides we have been sharing with clients a lot recently is: Disability Rights UK Factsheet ‘F60’ – ‘Personal Independence Payment – free guide to making a claim’. A hard copy of the guide can be ordered from Disability Rights UK’s shop or downloaded for free as a word document.

One of the things the Helpline team really like about this guide is that it makes suggestions for people with fluctuating conditions to keep and submit a diary with their PIP claim and it even gives an example diary of someone with MS, which is really useful.

If PIP affects you, we hope that by knowing about these resources it helps you to be able to be as informed as you can be. If you need support, we want you to know that the Helpline team is here if you need us. The Helpline team all have benefits training and are able to give quality information and support to people contacting our service. We can spend time you and support you to understand the processes involved and to be able to articulate you needs to the DWP in a way that we hope will help you gain the right level of benefits for your personal circumstances.

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Call 0800 783 0518

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About MS-UK

MS-UK was established in 1993, and is a national charity dedicated to empowering people with multiple sclerosis to make the most of today, and live life to the full. We put people affected by MS at the heart of our work. We provide high quality, professional services to support people living with multiple sclerosis, and we listen to people affected by MS.
This entry was posted in benefits, Helpline, Helpline Live Web Chat Service, MS, MS-UK, Multiple Sclerosis, Personal Independence Payment, Uncategorized, welfare and tagged , , , , , , . Bookmark the permalink.

2 Responses to Personal Independence Payment – some resources you may wish to know about….

  1. Helen Lee says:

    I’m so upset, anxious, worried after finally receiving my PIP decision on Friday. I got 8 points out of the 12 i needed to qualify for my Motability car. I’ve been on the higher rate of DLA for 22 years (1994) at the age of 23. My partner (on my behalf) I was too upset, immediately rang the DWP for reconsideration as the points in both personal care & mobility NOT awarded to me are so wrong & doesn’t reflect what was discussed at length at my assessment! 😕 He was told my reconsideration would be a 4 – 9 weeks wait & in the meantime, Motability would be in touch to collect my car within the next few weeks! He then asked ” but if her reconsideration is overturned what about her car that has been taken from her? Does she get it back? The reply was ” no, her car goes regardless. If she is successful, she can order a new car” We are stunned & stressed at the madness of it all! My car is 6 months old & my partner paid extra for the car to include things that helps my needs like keyless entry, easier petrol nozzle. Any advice or guidance would be gratefully received. I’m in bed today as my spasms & numbness are so bad. The shock & stress of all this is playing havoc with my health & I feel so wretched….Thank you for reading my situation…


    • msuk2015 says:

      Hi Helen,

      Very sorry to hear of your situation. I have passed this on to our Helpline team, who wrote the blog post, and they will be in touch with you via email.


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