I’ll be honest, when I wrote the blog about the Panorama programme, I wasn’t expecting there to be a response – after all, this was just me sounding off, surely?
Quite a few people have responded, and it seems I am not alone in not liking the tone or brevity of the programme.
Danielle Reilly said she felt ‘cheated and deflated’, adding that she thought the programme could be ‘daunting’ for the newly diagnosed.
Kirsteen posted that she thought the episode ‘gave false hope to those whose family members have MS’ while Nikki picked up on the point I made about the programme only showing the positive side.
Many of you also felt that the programme was too short, while many rightly pointed out that people with primary progressive MS were not even given a mention, let alone any hint as to what such treatment might mean for them.
Louise, meanwhile, suggested I was lucky to be so glib about having MS. I am glib about it, I fully concede, but that’s just how I deal with it. I in no way ever mean to make light of what others go through.
If it seemed like I was, then I apologise. That was never my aim.
We all have our own approach, and that’s just one of the ones that works for me.
Please keep your comments coming in. My hope is to speak to the programme makers in the coming weeks with a view to presenting people’s views and reporting on their response in New Pathways 96.
I’m also hoping to speak to the team in Sheffield, again asking the points you have raised, while looking at other areas of stem cell treatment – including, hopefully, clinics in other countries.
Thanks again for taking the time to share your views.
Hopefully we can keep the debate going and continue to help and support each other.
Editor, New Pathways
Affected by the show?
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