Can you help shape our leaflets?

Hello,

survey graphic.png

We are refreshing our Choices leaflets for people affected by multiple sclerosis (MS) and we need your real life experience to help shape them!
If you have a diagnosis of MS it would be great if you could take our quick survey. The questions are about adult social care, exercise and fatigue.

We want to always provide people with the fullest range of choices available to them; not only drugs but all types of treatments and lifestyle changes. We hope that by including your experiences, our leaflets will truly resonate with people who turn to us for help.

Please be assured that any comments you give us will remain anonymous when published in our Choices leaflets.

Thank you for your help!

Best wishes,

The MS-UK Helpline team

Advertisements
Posted in Adult social care, Charity, Choices Leaflets, Chronic illness, Diagnosis, disability, DMTs, exercise, Fatigue, Helpline, MS, MS drugs, MS exercises, MS symptoms, MS-UK, Multiple Sclerosis, neurology, Survey, Uncategorized, wellbeing | Tagged , , , , , , , , , | Leave a comment

Guest blog: Hilton’s marathon story…

Next year, Hilton Lindo will be running the Virgin Money London Marathon. Find out why in Hilton’s guest blog…


Hilton Lindo

I was delighted to be accepted for a place in the 2018 Virgin Money London Marathon for MS-UK.

Upon accepting the offer, I set about creating a JustGiving page and decided to spread the word!

Specifically, I shared my story on Facebook, LinkedIn and emailed current and previous work colleagues.

I chose MS-UK as a charity to fundraise for, because I wanted to raise money for a cause close to my heart. As my wife has multiple sclerosis (MS) and has been progressively affected by the condition for over 13 years, I am acutely aware of the importance of the vital support delivered by fantastic organisations such as MS-UK.

At first the target of £2,000 seemed daunting but I was reasonably confident that I should be able to raise at least half of this by the end of the year, to stand me in good stead for the New Year.

So, I was delighted, humbled and thrilled to hit my target in just 21 days! This is such a fantastic testament to the great support my family and friends shown to my wife and I.

My wife has been a great support to my fundraising efforts too. My wife does great work in the community, undertaking several volunteer roles for a local community association. She reached out and shared my JustGiving page with friends and colleagues, resulting in several generous contributions to the fundraising effort.

 

Amazed that my fundraising went so well so early on, I recently increased my target to £3,000. I have had many promises of further donations and I also have lots of ideas for more fundraising in the coming months, so I am confident that I can exceed this target too!

 

My wife is planning to make Christmas cards to sell at a local Christmas event. I am planning to organise some fundraising activities at work in the Spring, including charity car washes and cake sales. Finally, we both had the great idea of working on a flyer to leave in local businesses we use to help promote the fundraising effort!

This successful fundraising to date has shown me that by being passionate about a cause, demonstrating a compelling reason to sponsor, the sky’s the limit for me!

Please read my story here: www.justgiving.com/hiltonlindo

Posted in blogging, Charity, family and MS, Fundraising, Guest blog, London, Marathon, MS, MS-UK, Multiple Sclerosis, Running, Uncategorized, Virgin Money London Marathon | Tagged , , , , , , , , , , | Leave a comment

5 ways to stave off colds this winter – flu vaccination

Our fifth and final blog this week in our series of how to stave off colds this winter is all about the flu vaccination…

5

It’s a controversial subject – should you or shouldn’t you have it? Flu vaccination is estimated to be effective in 17-53% of older adults compared to 70-90% of younger people.

But if you do decide to have the flu vaccination, a recent study conducted by Nottingham University has found that being in a good mood when you have your flu jab boosts its efficiency.

The team of scientists measured negative mood, positive mood, physical activity, diet and sleep three times a week over a six week period in a group of 138 older people due to have their flu jab. Then they examined how well the jab was working by measuring the amount of influenza antibody in the blood at four weeks and 16 weeks after the vaccination.

The results showed that of all of the factors measured, only positive mood over the six week observational period predicted how well the jab worked – with good mood associated with higher levels of antibody. In fact, when the researchers looked at influences on the day of vaccination itself, they found an even greater effect on how well it worked, accounting for between 8 and 14% of the variability in antibody levels.


If you would like information and support about anything we have covered this week, or would just like to chat, the MS-UK Helpline is here to help. Call us on 0800 783 0518, email us info@ms-uk.org or chat with us online at www.ms-uk.org/livewebchat.

Posted in blogging, Choices Leaflets, Disabled living, GPs, health, Helpline, Helpline Live Web Chat Service, MS, MS community, MS-UK, Multiple Sclerosis, neurology, Uncategorized, wellbeing, Wellness, Winter | Tagged , , , , , , , , , | Leave a comment

5 ways to stave off colds this winter – number 4

Number 4 in our list is relaxation…

5

The more stress and rundown we are, the more likely we are to contract a cold, so take some time to relax. It’s up to you how you do this, you might want to grab a quiet hour to read a book, take a long hot soak in the bath, try out some meditation techniques or simply go for a walk.

Meditation can be a little intimidating if you’ve never done it before, but there are lots of apps that can be downloaded to your phone or tablet device that can teach you how to do it correctly.

Headspace is a digital service that provides guided meditation sessions and mindfulness training. It offers a free trial to get you started and if you decide you like it you can sign up to get access to lots of other meditation programmes it has to offer. In April 2016, Headspace claimed to have over six million people using its app. Click here for more information.

Check back tomorrow for our fifth and final blog, all about the flu vaccination.

Posted in blogging, health, MS, MS community, MS-UK, Multiple Sclerosis, Uncategorized, wellbeing, Wellness, Winter | Tagged , , , , , , , , , , | Leave a comment

Ghoulishly great ideas!

HalloweenNeed some inspiration to take the fright out of fundraising? Check out our fangtastic top 5 ideas to get you in the spirit for Halloween!

  1. Fancy dress day

At work or at school, why not ask your friends to make a donation to come in for the day in their most freakishly thrilling costume?

  1. Jack-o’-Lantern competition

Traditional or contemporary, how you carve your pumpkin is up to you! You could ask people to pay to enter the competition, and ask a local shop to provide a prize?

  1. Thriller dance-a-thon

Could you dance the night away under the moonlight? Organise a sponsored dance-a-thon in aid of MS-UK. 

  1. Movie marathon

If you love horror films, then organising a movie marathon is a great way to fundraise at Halloween. Charge your guests a fee for coming along, and ask them to bid on which film to watch. Just don’t forget, he’s behind you! 

  1. Trick or treat bake sale

Everyone loves a devilishly good cake, so why not organise a bake sale at work or school? Charge a fee for your monster munch and donate the proceeds to MS-UK!

Order a fundraising pack by emailing Jenny or calling us on 01206 226500. We’re here to help!

Whatever you do this Halloween, stay safe and have fiendish fun!

Best wishes,

Jill and Jenny

The MS-UK fundraising team

 

Posted in Uncategorized | Leave a comment

Fundraiser of the Month: Sarah Harrison

Sarah_cropOur fundraiser of the month for October is Sarah, who has supported MS-UK for years now and continues to do so! Read her story her, plus her top tips!


I’m Sarah from Derbyshire and I ran the Royal Parks Half Marathon in London for MS-UK.

I am a life-long ‘jogger’, although I have had a number of “career” breaks, I started running seriously again about 5 years ago which enabled me to slowly learn to love British weather, extra food and the views of the countryside (OK – so one of those was a lie!!) I have run a number of 10K, half-marathons, marathons (including London on an MS-UK charity entry) and Ironman 70.3s. I find the half-marathon distance is my preferred since they tend to be just long enough to enjoy a pub lunch afterwards. However, my racing ambitions seem mostly based on a principle (much like cake) of biting off more than I can chew.

With running – fun and enjoyment has always been my priority, I always felt that there was no such thing as a bad race just good stories. I loved the social nature of the running community and on some occasions even managed to perfect the skill of smiling for race photographers.

I like to follow a training plan which I think suits my lifestyle, however, my nearest and dearest will tell you that it actually takes over my entire life and I’ve continued through injuries on many occasions. Although, I guess I should be grateful for: being introduced to the joys of energy gels, an endurance runners best friend (once the stomach is trained!) that we are given 10 toe-nails for a reason… so that we can afford to lose a few and to appreciate that I now spend more money on a pair of trainers than a pair of high heels.

So why did I choose to run for MS-UK? Someone very close to me was diagnosed with multiple sclerosis (MS) which as you would imagine came as a huge shock to both them and our family, and although I’ve known of other people affected by the condition I now understand, in part, how this can impact someone’s life and those around them first hand and considering there is currently no cure my decision to run for MS-UK since 2013 was a “no-brainer” to ensure I could do my bit to raise as many funds as possible. I hope that my fundraising efforts not only raise money to provide dedicated support and information to anyone affected by MS but to also increase awareness of this life-changing condition.

Throughout my running experiences I have been truly overwhelmed by human kindness and generosity from friends, family, work colleagues, schools, gym clubs and strangers!! Which brings me to a great tip – when going out on your long runs wear your charity vest – on one occasion I saw a lady in her garden and asked if she would mind refilling my water bottle, when returning with my refill she gave me a donation of £5 and insisted that every time she saw me run past from thereon in another £5 donation would follow.

In closing – “eventually” I hear you cry! You need a good reason to get out of a warm bed and pound the streets for hours and I found that without doubt, a powerful motivating factor is the knowledge that I’m doing it for such a great cause and on race day it is with great pride I race as an ambassador for all those affected by MS.

My training tips…

  • Don’t skimp – buy good trainers and always have 2 pairs
  • Eat for tomorrow
  • If you don’t feel like training – aim to do 10 minutes and come home (I guarantee you’ll stay out for longer)
  • Choose a training plan to suit you but be prepared to be flexible (there are 100s on the internet)
  • Set yourself a bronze, silver and gold goal for race day (this way you’ll never be disappointed if things don’t go to plan)

My fundraising tips…

  • Set up an online giving page (it’s an absolute must!) and repost regularly
  • Start early
  • Don’t be afraid to be cheeky and ask, ask and ask again
  • Wear you charity vest at every opportunity
  • Tell people your golden goal – a lot will offer to double their pledge should you achieve it!
Posted in Charity, Chronic illness, Fundraiser of the month, Fundraising, Half Marathon, MS, MS-UK, Multiple Sclerosis, Royal Parks Half Marathon, Running, Uncategorized | Tagged , , , , , , , , | Leave a comment

5 ways to stave off colds this winter – number 3

Number 3 in our list is exercise…

4

Experts advise you not to exercise if you’re feeling under the weather, but when it comes to staving off colds exercise can act as a preventative.

Exercise can improve cardiovascular fitness, muscle strength, mobility, balance and coordination. It can also improve mood, increase energy levels and help with weight management.

Studies have shown that regular exercise will help prevent the common cold. In one study women who exercised regularly were found to have a 50% less risk of colds compared to those who don’t work out.

Check back tomorrow for our blog about relaxation!


In our latest issue of New Pathways, we look at strength training (page 18), pilates and MS (page 30) and our regular feature writer Ian Cook sceptically took on the gym (page 20). You can read these articles by subscribing to New Pathways on our website.

Posted in blogging, health, MS, MS community, MS exercises, MS-UK, Multiple Sclerosis, neurology, Uncategorized, wellbeing, Wellness, Winter | Tagged , , , , , , , | Leave a comment