A client who regularly contacts the MS-UK Helpline has recently completed the process for registering with the MS Society Tissue Bank to donate her brain and spinal cord for research purposes after her death. The Tissue Bank is based at Imperial College London and is a collection of brain tissue donated by people with (and without) MS and other neurological conditions. The Brain Bank stores tissue left by donors and makes samples available to scientists carrying out research on MS. The Tissue Bank is funded by the MS Society and Parkinson’s UK.
Whilst lending an understanding listening ear over the Helpline the client made it clear that she really wanted to share her experiences and let other people affected by MS know about her massive personal achievement…
My name is Dinah and I have primary progressive multiple sclerosis, I wanted to share my experiences and thoughts about the MS Society Tissue Bank.
I understand that donating brain tissue is not what some people with MS may want to do, however if somebody does want to do this, my own experience has shown me that it is not as hard to do as you might imagine. There is a lot of help out there along the way for you to be able to do it.
When I attempted to first register with the Tissue Bank a few years ago, I gave up on it due to my personal circumstances at the time, it is a big decision after all. It has been on my mind to come back to it and get this done. I have been trying to find the time and energy needed for quite some time.
This year I got help from the team at the Tissue Bank at Imperial College London with the paperwork. They were very supportive through the whole process. It was not easy for me but it was simpler than I thought it was going to be.
I honestly feel that the day I heard I was registered to be a donor for research purposes and would be helping others with MS after my death was one of the happiest days of my life.
I feel less scared of dying now that I know that I will be helping people through research when I am dead. I am chuffed to bits.
Wishing you all happiness.
To find out more about the Tissue Bank at Imperial College London you can visit their webpages where you will find all the information you need including a ‘frequently asked questions’ section at www.imperial.ac.uk/brain-bank. Or you can call +44 (0) 20 7594 9734 or email firstname.lastname@example.org and the staff will be happy to help.