Have your say on how the UK is doing under the UN Convention…

Hi all,

In 2017 the UN Committee on the Rights of Persons with Disabilities will conduct its first examination of the UK, looking at the steps it has taken to implement the UN Convention on the Rights of Persons with Disabilities (UNCRPD).

They now want to hear from disabled people and people with long-term health conditions about how you think the UK is doing in upholding our rights under the UNCRPD.

Throughout September and October, seven half day events will be hosted across the UK to capture the opinions of real people.

For more information or to book your place, please email Nick Ash at events@disabilityrightsuk.org. Spaces are free, but limited, so booking is essential!

Flier UN image

Flier UN image 2

If you do attend one of these events, let us know how it goes, we’d love to hear about it!

Best wishes,

Kim sig

Kim Salmon

MS-UK Helpline

Posted in Uncategorized, MS, Multiple Sclerosis, MS-UK, MS News, disability, United Nations, Disability Rights | Tagged , , , , | Leave a comment

Join in with Channel 4 debate!

Hi everyone,MSU_0296

Channel 4 News is planning a debate on disability in the UK as part of their No Go Britain series and they have reached out to MS-UK so we can let you know all about it!

Coinciding with the Paralympic games, the discussion will be live on Channel 4 7 O’Clock News program, with an audience of 100-200 disabled people.

As everyone focuses on sport, this audience will have the opportunity to debate the other, more everyday issues surrounding disability with a panel including a Government Minister, transport bosses and representatives from high street brands, amongst others. Channel 4 have said it will be a chance for disabled people to highlight the barriers in the way of ordinary life and to debate with the panel how to make improvements.

If you are interested in appearing in this Channel 4 discussion, email Joe Izzard directly with the following information:

  • Your name
  • Contact number 
  • E-mail
  • Location
  • Age
  • Preferred contact method
  • Additional Requirements (e.g. support worker, accessibility aids etc.)
  • Occupation
  • Issue most important to you, regarding disability
  • Other issues important to you

This will be followed up with a further call or e-mail to confirm your place and help you with any necessary arrangements.

At present, Channel 4 don’t have details regarding a date or location, as these are still being arranged. It’s worth mentioning also that Channel 4 would help individuals towards transport and accessibility costs.

If you do decide to take part or accepted on to the show, do let us know how you get on!

Good luck!

laura sig

Laura May

Marketing Manager, MS-UK

Posted in Chronic illness, disability, Media shout out, MS, MS community, MS News, MS-UK, Multiple Sclerosis, Paralympics, Uncategorized | Tagged , , , | Leave a comment

You know you CAN do it!

Today we publish another of our ‘Guest Blog’ articles from Liz.

If you would like to write an article for our blog please contact john@ms-uk.org.

You can view the guidelines for writing for us online now at www.ms-uk.org/ourblog.


Liz Murby_300I am a fairly well qualified, 48 year old lady. Certainly like many readers of this blog/article, I’m sure, I have many certificates, which might suggest this to be the case, however, like you there is very much more to me than either this collection of certificates, or my own unique MS.

Each of us knows that our ‘own’ MS is exactly that, peculiar to us, unique, and probably changing day by day…over forty years or more possibly in my own case.

Happily, the same can be said of many MSers that I have met, there have been quite a few…in a 2 or 3 days at a caravan Skegness way, happy memories. Lee, Lee (popular name of its time, evidently), Rob, Vanessa, Sarah, Tina, Ed , Alvin, Canas, Dawn, et al…

Less than 12 hours ago I was very happy to spend a very productive 45 minutes or so, with Mary, who I remember from meeting 3 or 4 years ago, and her friend and colleague Alanah, both charming and inspiring ladies.

I’m patting myself on my back as I type: trying to make contact with readers of MS-UK, again…I have done successfully before, and see few reasons why this effort should be any different, indeed meeting Allanah, yesterday challenged me to do so, so I am, and here it is!

Great news from my meeting with Alanah and Mary, who have promised to connect me with activities of others in other parts of our common county, with a view to putting together an event of shared (MS) interest to anyone with a connection to multiple sclerosis. The group/branch has arranged, and indeed run, similar successful events in the past, and even has a newsletter, we should like to be able to re-connect, and see no reason not to be able to.

There’s the rub, if you’ve done something with success before, you know you CAN do it. Like me, you almost certainly hate to use your MS as a reason/excuse for not doing anything…make it a dare if you must/like…fortunately, or not, this is something that challenged me too, and I’m doing it.

After making contact with, and connecting with Allanah’s contact, my next personal challenge will be to undertake my neurophysiologist exercises (10 of each, no slipping, I’ll know and looking forward (well, my own August’s) challenge will be to attend an old (we were at University together) friend’s 50th birthday celebration, along with shared friends from Brixton, where Thinigo still lives: they shall give me a lift to Wales, and we shall join the celebration happily, together.

I look back on all of achievements, (work and extracurricular) they were very real, fun and productive in one way or another, and choose to pat myself on the back and take and develop further all the positives, there are many, and you will find the same too!…local branch/event first, almost certainly…I hope you will too, you know you can do it!

Posted in Guest blog, MS, MS community, MS-UK, Multiple Sclerosis, Uncategorized | Tagged , , , , | 1 Comment

MS Life 2016 – 17 & 18 September

film1Would you like the opportunity to meet the MS-UK Helpline team face to face?

Have you ever wanted to find out about all the latest MS research direct from those involved? Would you like to meet the scientists and professors behind the drug therapies?

Do you have questions about any aids and adaptations, accessible holidays and travel? Would you quite like the opportunity to meet others with MS and their families?

MS Life 2016 may well be just what you are looking for!

MS Life is a large exhibition held every other year and is organised by the MS Society. This year it is coming to London Excel and we are really looking forward to being there.

Tickets are free and you can choose to attend a variety of workshops as well as visit the main lecture hall for the keynote speakers. You might even wish to pay a little visit to the MS Life Spa or watch a cookery demo!

This year see’s the return of the demonstration area, where last time we go to see the wonderful Canine Partner dogs in action, showing off their skills, as well as some fantastic wheelchair dancing. We also saw demonstrations from some of the most amazing off road trikes and wheelchairs where you can even have a go yourself.

It’s a great event to find out about things you may not have even thought of, or realised existed. It’s also really nice to meet others and for family members to learn more too.

You can book your ticket now, and don’t forget to come and say hi to us, we will be right opposite the demonstration area, you won’t be able to miss us!

https://www.eventbrite.co.uk/e/ms-life-2016-tickets-24652570502

I look forward to meeting you,

Laura Amiss-Smith

Posted in Helpline, Helpline Live Web Chat Service, London, MS, MS community, MS Life, MS News, MS Society, MS-UK, Multiple Sclerosis, New Pathways, Research, Uncategorized | Tagged , , , , , , , , , , , | Leave a comment

What’s app-ening?

Hello,

Last Monday we launched the new digital version of our magazine, New Pathways, and we are all really excited about it here at MS-UK!

We have now got an app, and we hope to provide information and support to more people affected by multiple sclerosis than ever before.

What is an app?

‘App’ is short for application. Usually people download apps to their smartphone or tablets, so they can access information on the go. This means you don’t need to search for a program or write in a website address to get to the things you like.

When you download an app from the app store on your phone or tablet, an icon will appear on your home screen. This is like a shortcut, which will take you to your app every time you click on it. This does not cost you anything.

When you download the My MS-UK app, it will look like this on your phone screen:

app on your phone - graphic for blog (1).png

You can then open the app and get started! You will be prompted to login to the app, and you’ll be able to browse past issues of the magazine too if you purchase them.NP98_cover

Get this issue of New Pathways free!

To celebrate the launch of our digital version of New Pathways, for this issue only, everyone can read the magazine for free just by downloading our brand new app.

Simply search for ‘My MS-UK’ on your app store, and get reading!

kahnsig

Kahn Johnson

Editor, New Pathways, MS-UK

Posted in app, Charity, MS, MS community, MS News, MS-UK, Multiple Sclerosis, New Pathways, Uncategorized | Tagged , , , , , , , , | Leave a comment

Get this issue of New Pathways free!

Hi everyone,

For a while now, we have been working on a secret project at MS-UK, and I’m so excited to finally spill the beans today… New Pathways magazine is now digital!

That’s right, you can now read the only bi-monthly multiple sclerosis magazine on your smartphone or tablet, anytime, anywhere! Our app, ‘My MS-UK’, is simple and easy to use, and it means you can read articles from New Pathways on the go, and purchase back issues. The app also includes a quick link through the to the MS-UK website.

Get this issue of New Pathways free!NP app blog graphic (1)

To celebrate the launch of our digital version of New Pathways, for this issue only everyone can read the magazine for free just by downloading our brand new app. Simply search for ‘My MS-UK’ on your app store, and get reading!

The latest issue of New Pathways is packed full of our usual MS research and news, plus you can find out all about the MS Register, Blue Badge Style, if Inclined Bed therapy worked for Ian Cook and how Josephs Court helped Yvonne Harris.

Don’t worry, we still have our printed magazine, and you can subscribe to receive this on our website any time. If you’d like to move from printed magazine to digital magazine, just give us a call on 01206 226500 and we’ll move you over to the app.

I really hope you enjoy this free issue, and if you like what you see, you can subscribe to receive the next six issues for just £14.99.

Now, time to get ‘appy…

kahnsig

Kahn Johnson

Editor, New Pathways, MS-UK

Posted in app, Charity, MS, MS community, MS News, MS-UK, Multiple Sclerosis, New Pathways, Stephanie Millward, Uncategorized | Tagged , , , , , , , | Leave a comment

Meet the Josephs Court team…

At Josephs Court I am lucky to have a dedicated and passionate team around me. We are all committed to improving the health and wellbeing of people affected by MS and strive to provide a service that people find not just beneficial by also warm and welcoming.

A place where people can use our specialised exercise equipment, with the guidance of our wellness coaches, to help them manage their symptoms and also create meaningful and supportive friendships with other people affected by MS.

Now it’s time to meet the team!

Mike, he is the Boss and keeps harmony within the team.

Vicky, Mike thinks he is the Boss?

Alan, Mr nice guy, well so he tells us?

Jay, Mr Charismatic.

Brendan, he is ex-army, stand by your beds?

Together we are an awesome team which is dedicated to helping people achieve their goals and aspirations. Each team member brings a wealth of experience together with their own infectious personality.

We hope to see you at Josephs Court!

Mike sig

Michael Kinton

P.S. You can give us a call on 01206 867222 if you would like to have a chat about visiting us in Essex!

Posted in Charity, Colchester, Josephs Court, MS, MS-UK, Multiple Sclerosis, Uncategorized, wellbeing | Tagged , , , , , , | Leave a comment