Thirty-four years – A poem

In this guest blog, we share a poem from Graham Eastaugh. In 2016, Graham reached the milestone of living for thirty-four years with multiple sclerosis.

Graham shares another poem in the next issue of New Pathways magazine, so don’t forget to subscribe today!


PoetryThirty-four years

It’s April the Eighth, and as 5pm nears,
I’ve now had this illness for thirty-four years,
It’s been a long road, and there’s more to come still,
But MS shall certainly not break my will,
I’ve lived with depression, which tested my mood,
And grown quite accustomed to hospital food,
I’ve now been reduced to a shell of a man,
But fading out meekly’s not part of my plan,
I remember the excrement, urine and blood,
As if it were yesterday, then with a thud,
It hits me: it was only yesterday’s news,
For sanity’s purpose, black humour I choose,
Thirty-four years, yet the person exists,
With each passing second the illness persists,
But not only that, my lot worsens with time,
A sentence so stiff for committing no crime,
Thirty-four years, though it’s quite a bit more,
With hindsight, in years, I can add half a score,
The symptoms first showed in a much milder form,
I guess you could call it the calm pre-the storm,
But how can I moan about nature’s harsh laws,
When people before me had fought in World Wars,
While millions of others have no food to eat,
And cancer leaves manifold lives incomplete?
So give me your worst if you fancy a fight,
You might win the war but you won’t dim the light,
And just when you figure I’m flat on my back,
You’ll find out once more I’m a tough nut to crack,
I’ve taken a beating, there’s nowhere to hide,
You’ve taken my health, but you won’t take my pride,
Whatever you’ve left on your evil agenda,
As Churchill once said: “We shall never surrender!”
Thirty-four years, and the battle’s been tough,
I’m running on empty, but made of strong stuff,
I’ll carry on fighting right up to the end,
The practice of quitting I’ll never befriend,
It’s pointless pretending, I’m long past my best,
But that’s not to say that I lack any zest,
I’ll carry on living without any fear,
And shout with an obstinate voice: “I’m still here!

Posted in disability, Disabled living, Guest blog, MS, MS-UK, Multiple Sclerosis, New Pathways, Poetry, Uncategorized | Tagged , , , , , , , | Leave a comment

Do you live in Essex? Vote for us!

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We wanted to let you all know about an opportunity for MS-UK that we didn’t want to miss!

We are hoping to be TSB Colchester’s charity of the year, and this is where we need your help. Selections will be made on how many nominations the charity gets from the public. Please take a moment for vote for us and ask friends and family to vote too!

Nominate MS-UK today using the online TSB form!

Some information that may be useful for the form:

  • Our charity registration number is 1033731
  • Our email address is Jill@ms-uk.org and the best person to contact here is Jill Purcell
  • The question about what the organisation does has a 255 character limit
  • The postcode of the charity is CO2 8JF…please choose the Colchester Branch of TSB when it asks you!

The nominations close at 5pm on Wednesday 30 May.

Thank you for your help!

The fundraising team at MS-UK

Posted in Charity, Charity of the year, Colchester, Essex, Fundraising, Helpline, Helpline Live Web Chat Service, Josephs Court, MS, MS community, MS-UK, Multiple Sclerosis, New Pathways, TSB, Uncategorized, Website | Tagged , , , , , , , | 1 Comment

Take part in our quick survey

Hello,

There is still time to take part in our latest survey…we would like to know your thoughts about our Helpline opening hours.

We are reviewing whether there is demand for us to extend our hours to provide a service through existing and maybe new channels.
Please take the time to complete our survey to help us to make plans for the future.

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Thank you so much for sharing your opinions, they will help us shape this service for the future!
Best wishes,
Kim, Ryan and Laura
The MS-UK Helpline team
Posted in benefits, Charity, disability, Disabled living, family and MS, Helpline, Helpline Live Web Chat Service, MS, MS-UK, Multiple Sclerosis, neurology, Personal Independence Payment, Survey, Uncategorized, wellbeing | Tagged , , , , , | Leave a comment

Prudential RideLondon deadline

Hi everyone,

As this Thursday is the deadline to join team MS-UK for the Prudential RideLondon-Surrey 100, I thought I would share this video from my family to make you smile!

Cycling can be a lot of fun when you are joined by a friend. So, my brother Lawrence and my Dad, Andrew, paired up to cycle around the rural lanes of Tendring in Essex when they were preparing for their own RideLondon challenge in aid of MS-UK.

Little did they know they would be taken over by a peacock, who simply didn’t want to get out of the road!

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If you think you’re up for RideLondon and taking on the Olympic route (hopefully without any peacocks in the way!) get in touch with Jenny or call 01206 226500!

Best wishes,

Nick

Nicholas Adams

MS-UK

Posted in Charity, Cycling, Fundraising, London, MS, MS-UK, Multiple Sclerosis, Prudential Ride London, RideLondon, Uncategorized | Tagged , , , , , , , | Leave a comment

Guest blog: Mount Snowdon challenge!

In this guest blog, Keith Clayton tells us about his latest challenge fundraising for MS-UK – climbing up Mount Snowdon!


IMG_4561(4).jpgSeven of us, ranging in ages from eleven to seventy three, met at the Peny-y-Pass car park to begin our ascent of Mount Snowdon. We first checked at the Ranger Station to establish weather conditions, which said low cloud, mainly dry, and with the temperature at the summit of one degree centigrade.

We set off up the Pyg Track at 10.00am, with enthusiasm, lots of energy and occasional glimpses of the top of the mountain, which was some five miles and three thousand feet in the distance!

IMG_4546(1)After having stopped for a couple of short breaks we reached the summit at 1.00pm, where we were told the temperature, with the wind chill, was minus seven (it was very cold, we did not stay long !!!)

We began our descent down the Llanberis Pass, where we were able to find some shelter and stopped for a well earned lunch break. With renewed energy we continued down, now able to enjoy the dramatic scenery.

We reached our destination of the Penceunant Isaf (Snowdon Café), just above the village of Llanberis, famous for its coffee and homemade barra brith (Welsh tea cake) and a very warm Welsh welcome at 4.00pm.

It had taken us six hours, with a distance of approximately eleven miles covered and an ascent and descent of three thousand five hundred feet.

A good day, made even better having raised a total of £755.50 for MS-UK!


Want to start your own adventure? Check out our website today to find out more, and help us continue our vital work supporting people affected by multiple sclerosis.

Posted in Charity, Do your own thing, Fundraising, Guest blog, Mount Snowdon, MS, MS-UK, Multiple Sclerosis, Uncategorized | Tagged , , , , , , , | Leave a comment

Trishna Bharadia shortlisted for Rising Star Award!

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Trishna Bharadia, who you may recall set the stage alight in the first ever ‘People’s Strictly for Comic Relief’ on BBC1 in a four-part Strictly Come Dancing spin-off, has been shortlisted for the We Are The City Rising Star Awards 2017 for the charity category!

Trishna was diagnosed with multiple sclerosis in 2008, and since then has become an award-winning advocate. Trishna, who has appeared in our New Pathways magazine, regularly shares her experiences through charity work, showing people that living a positive life with MS is possible.

Visit the We Are The City website to find out more about the awards and vote for Trishna if you would like to! Voting closes on 09 June!

Everyone at MS-UK wishes Trishna lots of luck!

Best wishes,

laura sig

Laura May, Marketing Manager

Posted in Diagnosis, disability, Disabled living, London, MS, MS community, MS News, MS Society, MS-UK, Multiple Sclerosis, Uncategorized, wellbeing | Tagged , , , , , , , , | Leave a comment

Ready to bike to work?

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Friday 19 May is ‘bike to work day’ in the United States!

Will you be joining our overseas cousins and taking part?

A few of us at the MS-UK office are planning on doing our bit and cycling in from home, leaving our cars behind and reducing down our carbon emissions!

For those of you that cycle in every day and are keen on their wheels, we have an excellent event that is both a challenge and a great way to fundraise for our cause, providing information and support for those affected by MS.

The Prudential RideLondon-Surrey 100 event on the 30 July is a 100 mile race that starts in the Queen Elizabeth Olympic Park, and incorporates the Surrey hills including Box Hill and Leith Hill before finishing on the Mall.

It’s sure to be an amazing event, with cyclists travelling in from all corners of the country and even the globe to take part (hence the American connection!)

The ballot for this event is now closed, but MS-UK has a few guaranteed entries which are still up for grabs if you’d like to bag a place!

This event requires high levels of fitness and participants must be able to complete the route in less than 8.5 hours, so if you’re up for the challenge, do it for MS-UK!

For more information get in touch or give me a call on 01206 226500!

Now – on yer bike!

Best wishes,

Jenny

Jenny Poulter

Events Fundraiser, MS-UK

Posted in Charity, Cycling, Do your own thing, Fundraising, London, MS, MS-UK, Multiple Sclerosis, Prudential Ride London, RideLondon, Uncategorized | Tagged , , , , , , , , , , | 1 Comment